Coma continues while the DHB stuffs around

Seven Sharp reported on Friday that the Wellington DHB had agreed to apply to the Ministry of Health to enable CBD (non-intoxicating cannabis oil) treatment of Alex Renton, who has been in an induced coma for sixty days due to seizures. See “Teen in coma for 57 days needs legal access to cannabis oil”.

Stuff update this in DHB delays treatment application for teenager in coma.

Alex Renton, 19, of Nelson, has been in hospital since early April and remains in “status epilepticus”,  a kind of prolonged seizure.

Capital & Coast District Health Board decided late on Friday to apply to the Ministry of Health for approval to use a marijuana extract to treat him.

The ministry is yet to receive the DHB’s application. A DHB  spokeswoman said staff would work on the application on Monday, and was expected it would be sent to the ministry in the next couple of days.

This lack of urgency from the DHB is very disappointing, even disturbing. Possibly disgraceful.

Alex is still in a coma. His family are still waiting for something that may help him.

Damien O’Connor speaks up about it.

O’Connor, a former associate health minister, has been in contact with the Renton family and says he is outraged that bureaucracy has got in the way of saving someone’s life.

“As a previous minister, I’m well aware staff will work 24 hours a day to get something done and, if they’ll do that for a trade deal, then they should be doing it for a health matter,” he said.

The way Alex’s treatment had been handled was bordering on “unethical”.

The DHB’s procrastination is very difficult to understand. Someone’s life is potentially at stake.

“Teen in coma for 57 days needs legal access to cannabis oil”

Seven Sharp had an item on Alex Renton, the 19 year old who had a major seizure and has been in a coma in Wellington Hospital for 57 days. So far treatment has been unsuccessful, and his life is at risk.

His family want to be able to try using cannabis oil (CBD) which has been successful in reducing seizures in some cases.

Today, two weeks after a recommendation from Alex’s neurologist that CBD be tried, the Wellington DHB has put in an application with the Minister of Health requesting approval to be able to use it.

TVNZ News only seems to have this available online via this video; “Teen in coma for 57 days needs legal access to cannabis oil”

Mike Hosking: On a day where we found out that the courts weren’t in a position to help Lecretia Seales, what did the judge say, it’s really only Parliament’s job who can do that, we want to introduce you to a young man who has a similar vexed battle on his hands.

Nineteen year old Alex Renton, he’s been in a coma for fifty seven days with a mystery illness.

Nadine: The drugs haven’t fixed him but his family is holding out hope, because they believe Alex’s saviour could be cannabis oil. Problem is it’s illegal. So could a law change in this case save a life?

It’s use is allowed with the approval of the Minister of Health, according to the NZ Drug Foundation:

@PeteDGeorge @metiria The law doesn’t actually need changing. The minister right now could simply give approval… if he/she wishes.

Jehancasinader: (voice over video of his family celebrating Alex’s birthday in hospital):  Alex never expected to celebrate his nineteenth birthday in a coma. The pair of shows a present from Mum, for the day she hopes he’ll walk out of here.

Alex was as fit as a fiddle, until one seizure tipped his life upside down.

Alex’s doctors are stumped, their diagnosis uncertain. Meanwhile his brain is inflamed, and rocked by constant seizures.

Alex’s family believes there’s one last hope.  Cannabis. It’s illegal of course, but advocates say the oil can fire up neurons in the brain.

Rose (Alex’s mother): We’ve been offered the oil from overseas, clinically tested oil.

The oil is extracted from special strains of the cannabis plant that are very low in the intoxicant THC.

Jehancasinader: Last year we showed you how desperate Aussie families have relied on it to save their kids lives. It needs special approval. Rose says hospital officials are dragging the chain.

Rose: They seem to be frightened.

Jehancasinader: Until now Rose says drugs haven’t been a part of Alex’s life.

Rose: This isn’t about recreational marijuana, this is about medicine.

Jehancasinader:  Now Alex is being given Ketamine.

Rose: They choose to pour chemicals into him, but they will not choose a natural herb extract.

Jehancasinader: Rose believes time is running out for her boy.

Rose: A petition of twenty five thousand people have supported this treatment for Alex, and still we wait, he waits, because one hospital thinks they know better.

Mike Hosking: Jeez it’s been a tough day in so many respects hasn’t it Jehan, even to you, you’re with us live, just tell us how is Alex doing and what seems to be the hold up, what seems to be the problem here.

Jehancasinader: Well Mike I visited Alex here at Wellington Hospital late last night with his Mum. It was pretty tough actually seeing him lying in that bed unable to move and unable to talk.

Now you heard Rose saying that story that she believes the hospital has been dragging the chain on this, and we have the proof tonight.

The Ministry of Health says that it still hasn’t even received an application from the hospital for this cannabis treatment to be given to Alex.

Now this is two whole weeks after the neurologist said look we really need to look at this as an option. He is deteriorating.

Now within the past hour I finally heard from the DHB and they’ve confirmed that today they’ve decided to put that application in to the Minister of Health. He will have the final say on whether the cannabis treatment is granted and meanwhile Alex is spending his fifty seventh night in that hospital behind me.

Associate Minister of Health Peter Dunne will now have responsibility for this decision.